Let me be singing

One of my most fervent prayers through all of this brain cancer madness has been pretty simple. “Let me be singing, Lord. No matter what comes, just let me be singing.” This is probably odd to most people, especially if you didn’t grow up with a never ending flow of humming and tapping and rhythm... Continue Reading →

Tattered

I was getting ready to post the above photo on Instagram, citing our third born’s quirky attachment to his shoes long after the soles have worn through so much that his feet touch the ground as he walks. But the more I stared at the photo, the more his dirty toes sticking out from tattered... Continue Reading →

Nothing-er than Nothing

I follow a girl on Instagram who is a rare glimpse of reality in a medium often infiltrated by carefully curated “honesty”. She lost her husband to cancer a little over a year ago now. Several weeks ago, she posted a picture from his last days. Days when she was always near him, afraid to... Continue Reading →

He will be good

Jesse is having brain surgery tomorrow. Again. This will be the third time someone has accessed and manipulated the fragile contents of his skull. I wish I could tell you that we’ve developed some sort of immunity to the fear and anxiety that accompanies these procedures, having done it twice before, but we haven’t. Sleep... Continue Reading →

Shadowy Places

I don't sleep well at night. I never have, really. I am intimately acquainted with the dark part of the morning because of this, the part where sleep won't come and there is nothing but me and my thoughts and the seemingly endless impenetrable blackness of nightfall. The part where half the world is midway... Continue Reading →

Pennies

For months now, I’ve been searching for a word or phrase or image that could be hung above the door frame in our bedroom over the spot where Jesse says he opened his eyes to find everything was different all those months ago, something to replace a symbol of fear with a reminder of Hope. ... Continue Reading →

Chemo for Christmas

The contrast of the peppy chirping out of the words to "Walking in a Winter Wonderland” through the speakers above me and the guttural, barely audible groaning of my momentarily atrophied spirit were so absurd it grew comical in my mind. My face felt detached from my thoughts and my expression must have reflected the... Continue Reading →

Let them become women

I haven't rested well the past few nights for the wondering. Benign phrases to the general population cut into my core like a knife dipped in acid, causing the seething, searing, nerve-disintegrating pain that comes with an awakening of awareness. I'm disabled. Did you know that? A lot of people who find themselves on this... Continue Reading →

One Year

It's been a year now. One year since I woke up on a Sunday morning and took the kids to church so Jesse could sleep off a stomach bug. One year since I stepped off of the stage at church and knew I needed to get home as quickly as I could. One year since... Continue Reading →

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