Several years (and a battery of tests that nearly killed me) ago, I was diagnosed with a string of autonomic nervous system disorders. After months of attempting to regulate my heart rate and blood pressure with medications, which resulted in more near death experiences of allergic reactions and other side effects, my cardiologist recommended I,... Continue Reading →
You know, it’s funny, I could not have imagined I would still have any new words left about all of this at this point, but they still keep pouring forth, though I know the theme is the same: Jesse is dying. Our kids are yearning for something we cannot give them. I am increasingly shattered... Continue Reading →
He was dying the day a butterfly alighted on his shoulder and stayed for several minutes. He was dying as he twirled his small daughter around on the dance floor during the reception of a beloved unbiological sister (a term my family uses to describe two of our siblings the good Lord gave us through... Continue Reading →
I am not what some would call, an ambitious person. The things I have done in this life I have done simply because they were the next thing which presented itself to me that needed doing. I am ambling about, sometimes forward, often pausing to look left and right until I am dizzy, when I... Continue Reading →
I snapped this picture moments after Jesse sat upright in the ER and scooted to the end of the bed in an attempt to stand, feisty from the medications he was given to stop the seizures. I stared at it awhile, perplexed by the vibrant colors of the photograph. That’s when I realized it’s a... Continue Reading →
Every Little Jot & Tittle 