She and him

“Daddy?”, she whispered from her place of refuge between him and me in the bed, “Will you hold my hand?” The familiar rustling of his weighted blanket moving. Her contented sigh as his hand enveloped her own. Lightning flashed again, bright blue illuminating their faces for a moment before the darkness returned and thunder shook... Continue Reading →

Chasing the bright spots

I'll make this brief-ish because this has been the Monday of all Mondays, and we are in desperate need of a good meal and a long sleep. We learned on Friday that insurance had denied Jesse's surgery. We began the fight with them then, which has continued onward today. It's complex (and actually pretty boring),... Continue Reading →

Let me be singing

One of my most fervent prayers through all of this brain cancer madness has been pretty simple. “Let me be singing, Lord. No matter what comes, just let me be singing.” This is probably odd to most people, especially if you didn’t grow up with a never ending flow of humming and tapping and rhythm... Continue Reading →

Home again

I am sitting in my own living room, family members piled onto sofas around me, Jesse sitting across from me and beside our youngest son. We arrived home less than 24 hours after his surgery was completed. Let that sink in a minute, y'all. Yesterday, he was sedated while skilled doctors tediously worked on his... Continue Reading →

Surgery Three Updates

We've been playing around with different update options, and we think this is still the best option for our friends who follow our story through the blog. So, here is how this will work... There will only be this one link for the duration of the day. For my email friends, that means you will... Continue Reading →

He will be good

Jesse is having brain surgery tomorrow. Again. This will be the third time someone has accessed and manipulated the fragile contents of his skull. I wish I could tell you that we’ve developed some sort of immunity to the fear and anxiety that accompanies these procedures, having done it twice before, but we haven’t. Sleep... Continue Reading →

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