About all of that seizure testing we did…

I woke you up two nights ago, accidentally. I tripped in the darkness coming out of the bathtub and into the door frame. You startled and your body went rigid with seizure, caused by abrupt awake-ness from the dream taunting you into unrest. Your eyes opened unnaturally wide, your right pupil hyper-dilated, encompassing the blue... Continue Reading →

Four Years of Brain Cancer

I am not what some would call, an ambitious person. The things I have done in this life I have done simply because they were the next thing which presented itself to me that needed doing. I am ambling about, sometimes forward, often pausing to look left and right until I am dizzy, when I... Continue Reading →

The Thorns in Our Flesh: how living unhealed has taught us to live hopeful

Three times…more than that…I pleaded with the Lord, “Take this from us. Heal him, God. What good is he to your kingdom, dead? What love is this, making children fatherless?” And He answered with a tiny flower growing out of thorns in the middle of my wilderness as I watched a dying father guide his children down a steep path. "My grace is sufficient-enough-abundant, for you.”

Returned to me

It’s been a good long while since we’ve sat peacefully in the living room after Jesse’s 8pm seizure meds, everyone laughing together, talking in the way people who are comfortable with one another do on a cool fall evening. It feels peculiar and delightful, like when you get a surprise package in the mail from... Continue Reading →

Chasing the bright spots

I'll make this brief-ish because this has been the Monday of all Mondays, and we are in desperate need of a good meal and a long sleep. We learned on Friday that insurance had denied Jesse's surgery. We began the fight with them then, which has continued onward today. It's complex (and actually pretty boring),... Continue Reading →

Tattered

I was getting ready to post the above photo on Instagram, citing our third born’s quirky attachment to his shoes long after the soles have worn through so much that his feet touch the ground as he walks. But the more I stared at the photo, the more his dirty toes sticking out from tattered... Continue Reading →

The uncomfortable grace of suffering

I could hear the underlying despair in the higher than normal pitch of his voice. "I can't believe it's been so many months. It's been long, but also short." Another friend in the cancer fight alongside his beloved. Time that passes simultaneously quickly and slowly is a side effect of cancer. It is grueling days... Continue Reading →

Home again

I am sitting in my own living room, family members piled onto sofas around me, Jesse sitting across from me and beside our youngest son. We arrived home less than 24 hours after his surgery was completed. Let that sink in a minute, y'all. Yesterday, he was sedated while skilled doctors tediously worked on his... Continue Reading →

Pennies

For months now, I’ve been searching for a word or phrase or image that could be hung above the door frame in our bedroom over the spot where Jesse says he opened his eyes to find everything was different all those months ago, something to replace a symbol of fear with a reminder of Hope. ... Continue Reading →

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