You know, it’s funny, I could not have imagined I would still have any new words left about all of this at this point, but they still keep pouring forth, though I know the theme is the same: Jesse is dying. Our kids are yearning for something we cannot give them. I am increasingly shattered... Continue Reading →
I woke you up two nights ago, accidentally. I tripped in the darkness coming out of the bathtub and into the door frame. You startled and your body went rigid with seizure, caused by abrupt awake-ness from the dream taunting you into unrest. Your eyes opened unnaturally wide, your right pupil hyper-dilated, encompassing the blue... Continue Reading →
He was dying the day a butterfly alighted on his shoulder and stayed for several minutes. He was dying as he twirled his small daughter around on the dance floor during the reception of a beloved unbiological sister (a term my family uses to describe two of our siblings the good Lord gave us through... Continue Reading →
I am not what some would call, an ambitious person. The things I have done in this life I have done simply because they were the next thing which presented itself to me that needed doing. I am ambling about, sometimes forward, often pausing to look left and right until I am dizzy, when I... Continue Reading →
I snapped this picture moments after Jesse sat upright in the ER and scooted to the end of the bed in an attempt to stand, feisty from the medications he was given to stop the seizures. I stared at it awhile, perplexed by the vibrant colors of the photograph. That’s when I realized it’s a... Continue Reading →
Three times…more than that…I pleaded with the Lord, “Take this from us. Heal him, God. What good is he to your kingdom, dead? What love is this, making children fatherless?” And He answered with a tiny flower growing out of thorns in the middle of my wilderness as I watched a dying father guide his children down a steep path. "My grace is sufficient-enough-abundant, for you.”
No one can really know what a life is like unless they are living it. I try to convey hard moments in this writing place, attempt to communicate facets of all of this with clarity and truth and a kind of vulnerability I am resistant in nature to display. Christ’s work in me, these words... Continue Reading →
It’s been a good long while since we’ve sat peacefully in the living room after Jesse’s 8pm seizure meds, everyone laughing together, talking in the way people who are comfortable with one another do on a cool fall evening. It feels peculiar and delightful, like when you get a surprise package in the mail from... Continue Reading →
When our third born was a much littler guy, he hated being held as much as he craved the safety of being in our arms. He would beg to be scooped up off of the ground, only to beg to be put down as soon as he felt the restraining squeeze of arms which he... Continue Reading →
I opened the door, took a step in, and the weight of it all pressed the breath from my lungs. Maybe it was because it's September, a month that represents the beginning of an always shape-shifting life, or maybe it was because my connecting flight left without me and I had been awake for 27... Continue Reading →
Every Little Jot & Tittle 