I snapped this picture moments after Jesse sat upright in the ER and scooted to the end of the bed in an attempt to stand, feisty from the medications he was given to stop the seizures. I stared at it …
Category: Every Little Jot & Tittle
What we do and don’t know
I took his battered hand in mine as we walked from hospital to parking garage this afternoon. He’s unsteady on his feet. Still heavily medicated. Staying on high doses of nausea meds from a stomach that hasn’t balanced out from …
The shredded remains
I walked into the laundry room this morning with a Walmart bag of Jesse’s sweat drenched, vomit covered clothing to give them a thorough washing. I remember seeing a ragged edge on his shirt when I scooped it from the …
What a week…
For those of you who follow our story on social media, the next few blog posts will be things you have likely already seen on facebook or instagram. I realize that many of you only follow our story through …
You’re just human
I opened the door, took a step in, and the weight of it all pressed the breath from my lungs. Maybe it was because it’s September, a month that represents the beginning of an always shape-shifting life, or maybe it …
Chasing the bright spots
I’ll make this brief-ish because this has been the Monday of all Mondays, and we are in desperate need of a good meal and a long sleep. We learned on Friday that insurance had denied Jesse’s surgery. We began the …
Hope in the Hard: for the suffering on Christmas
It all began with a series of misspelled texts from young children in the damp fall of southern life in 2015. I was driving home after a two week stay at my sister’s home in Louisiana, where I had been …
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